Well, if I held my breath I'd be blue and passed out by now. Insurance couldn't give us a decision on Friday. They need to speak with Griff's GI doctor in Boston but she's currently on vacation. Now we wait. (and wait, and wait...) I don't have a gut feeling about how things will go. I don't want to get my hopes up only to have them dashed. The way things are going, I'll be around to help Nevin get adjusted to his new preschool classroom and teachers and maybe pick out his Halloween costume. Those are all good things. : )

Holding my breath...

It's only a few hours now until I can call insurance and find out if they have approved Griffin's stay at Kennedy Krieger Institute. I called yesterday and was told that there'd be a decision by noon today! The hours can't tick by fast enough right now...

Just Waiting for Insurance

We have gotten several calls from Kennedy Krieger, keeping us updated as to where we are in the process of "getting there." Currently they have written a letter to our insurance company detailing what Griffin is currently doing/not doing by mouth and via tube feedings. They have gotten some feedback already asking for a specific referral from Dr. Ingerowski, our pediatrician. We are so ready to get Griffin started at KK.

Last night was a terrible night as he threw up several times overnight (lots of late night bathing which Griff just loves.) He's had such great success gaining weight and keeping feedings down since he has been on the Periactin. He has gained 2 lbs. this month alone. The problem though is that he needs to cycle off the medication so that he doesn't build up a tolerance to it. Ideally we would have 3 weeks on then 3 weeks off but Hugh and I just can't do it. The vomiting is just too much to deal with, especially over night. (So THIS is why we registered for so many crib sheets!) He has been off of the Periactin for 1 week as of today. Dr. Fishman (GI dr. in Boston) said that the 3 week cycle is arbitrary and we can adjust as needed.

I started him back on the Periactin this evening.